Outrageous: Children will not receive revolutionary Cystic Fibrosis drug due to high cost – TheLiberal.ie – Our News, Your Views
December 15, 2018

Outrageous: Children will not receive revolutionary Cystic Fibrosis drug due to high cost

There is outrage this evening as it was revealed a so called “wonder drug” that is used to treat adult cystic fibrosis patients has been rejected to treat children.

The rejection of the drug which will most likely upset many parents came after a recent study conducted by The National Centre for Pharmacoeconomics (NCPE) found that it would cost more than €1 million per patient over a five-year period.

The NCPE say the drug named Kalydeco was not cost effective to
treat over 18 children during a five-year period. It is estimated that the drug would cost €21 million over five years.

Meanwhile Cystic Fibrosis Ireland has said they are extremely disappointed that the drug was not approved given that it could be a revolutionary therapy in the fight against the illness.

H/T Irish Times

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