There was some good news for parents of children with Spinal Muscular Atrophy as the HSE has formally approved the use of new drug Spinraza.
In a move that will help children across the country the HSE have confirmed that children will now have access to the revolutionary new drug.
The news of the drug’s approval was confirmed by the Minister for Health Simon Harris in tweet which said the following: “Welcome news today that Spinraza is now approved by the HSE,” he said.
“This is the first ever treatment for children with SMA.”
“I know how hard the long journey to get here has been for families but very glad children in Ireland will now have access.”
Spinal Muscular Atrophy is a genetic condition that affects the nerves in the spinal cord.
Amongst its known causes patients can experience problems such as muscle weakness, movement difficulties as well as difficulties in breathing and swallowing.
